Monday, June 23, 2008

Alive, and a busy time of year.

So, Alec came home from the hospital and had a rough week at home but is now feeling SO much better. I hate seeing him sick. He tolerates it like such a tough little boy but I know he's hurting and in pain. He never complains. I wish I were as strong as he is. Here are a few pictures as we were getting packed up to go home.

Here is a picture of a rash he developed. It just went away this past week.

And here is a picture of all the artwork that my other kids made for Alec to brighten his room.

UCDavis is such a great place for Alec. Their pediatrics ward is incredible. Alec happened to be there on the day that the police dept. (sorry, can't remember which) came and set up a whole room as a toy store and the kids got to go "shopping" and even their siblings were invited. Alec was too sick to go but I had Piper help me pick out a few things for him. Piper picked a doggie in a carrier and has not let it out of her sight since. Too cute.
We just found out Alec's date of surgery for his cranioplasty, July 11. I am excited and scared and relieved and apprehensive all at the same time. It will be so great to finally get past this chapter of our lives. Alec needs to be put back together. I'm also having post traumatic stress over the memory of the last bout of surgeries. Alec MUST stay infection free. His little body is too weak to handle another extended stay in the hospital. I always get butterflies when he goes in but I know he has a great neurosurgeon who has the same approach to recovery as we do. July 11 is coming so much faster that I thought it would. I am taxing my brain tyring to figure out some really fun stuff to take Alec to do in the next couple weeks. I want to make sure he remembers how much fun we can all have together so he will be motivated to come home fast. Any fun ideas you can recommend?

As for this time of year, I have Father's Day, Marc's Bday, and Kaity's Bday all in a row. Boy am I glad that week is past and I can relax just a bit. I threw a surprise birthday party for Marc this year and for the first time ever I think I may have succeeded. I will never truly know because he's a good liar :P I hope he had a good time. Since we can't take a vacation, we put up a pool in the backyard and bought a BBQ (love that thing!!!) so we are enjoying our backyard a little more. Now if only we had some grass... I am also looking forward to getting Alec in the pool for some much needed aquatic therapy. I hope you are all having a fantastic summer so far and escaping the heat when you can. Only 10 more weeks until our baby girl greets us so in the mean time I am pushing our air conditioner to the max and having fun in the pool!!!

p.s. for those of you waiting for the newsletter, I apologize for the extreme delay. With Alec being in the hospital and preparing to go back to the hospital my scrapbooking side has taken a back seat. If I can get myself together I will try to pack up the laptop and get some work done while I'm in the hospital with Alec. Maybe I can get another freebie posted up here soon. Thanks for your patience :)


Wednesday, June 4, 2008

So tired...................*snore, snore*

My little man, Alec, is in the hospital again. The nasty cough that is going around managed to find ALL of my children. Alec handled it okay for about 2 days and then took a quick nosedive Sunday night and ended up in the ER. After about 4 hours they decided that he needed to be transported to the children's hospital (UC Davis) for admission. He had aspirated and developed a pneumonia and was on continuous oxygen for a low pulse ox until yesterday afternoon. He HATES having his face touched and wearing the adult sized mask (why do they only have infant and adult?) made him miserable. I'm so glad he's off the oxygen now. He has literally been a pin cushion since Sunday. He is a notoriously hard stick and he proved no exception this time. I think our count may be up to 20 this time?!? His IV blew today and they couldn't find another vein. Luckily he is tolerating his feeds again and his antibiotics can be administered IM and via his G-tube. His blood culture from the ER grew out staph but we had to repeat the lab today to check whether it is a real infection or a contaminant. I'm praying for the latter. Yesterday we thought he might be discharged today but after spiking a fever last night they said no way. So now we are hoping for Friday. This is all feeling way too familiar. I remember feeling and thinking these same things in February 2006 when he was last admitted. I couldn't have forseen the impending 7 month stay ahead of me at that time. Everyday I kept thinking, "Well, maybe he can come home tomorrow." Looking back I have no clue how we made it all those months in the hospital. I guess it's very true that ignorance is bliss. Had someone told me how long we would be there back then I would have laughed and then likely had an aneurysm. I wasn't prepared for an admission this week. I really thought we'd make it until July when he's scheduled to have his prosthesis surgery for his skull. Last time I had just had a baby (Parker was 4 weeks old) and now I'm pregnant and due in just a couple months. I really don't want to raise another newborn in the hospital. I know Alec is the toughest little man I have ever met so I will keep praying and trusting that he will come home soon. For now though, I will attempt to sleep. Sleeping on the pull out chair in the room for three days is enough to wipe me OUT!!!